A-Way-Through

Caretaking for Parkinson’s is a life we courageously live; finding our way through to a life we love—is what we consciously choose to create.

Sheila Rozann

For me this story illustrates how easily the calm, hard working, exhausted, sometimes discouraged caregiver’s needs can be overlooked in the drama of the patient’s illness. Sheila is a powerhouse ballet teacher who’s list of students who have become illustrious, professional, principal and solo dancers […]

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In Honor of My Dad

 My dad has been a moral compass for me; not because he is always right but because he takes responsibility when he is wrong. My father is 89 years old and I find it fitting to write about him in my 89th blog. He is […]

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Be In The Now

No person IS their disease but a person can feel like that disease they are experiencing erases them. Recognizing this is a good step towards taking action to help someone living with disease to come home to themselves. When I was a young mother I […]

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Building Relationships When Living With Disease

The good news for us was that the friends who were able to show up and the friendships forged after the disease was well into play, have been reliable, steady and true. After a disease is diagnosed, some relationships will change or end. We all […]

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Creative Caregiving: People Need People

“Look what you have created here! So much life and all your family and people all around making your life a heaven.” When I was thirty five Andy and I traveled with our kids in our camper, all over the USA, selling our work at […]

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Building Relationships: For the Caregiver

When I spent time walking in the mountain forest outside our house, it was as if that connection with nature broadened my view to be able to include Andy’s illness into the whole tapestry of our life. Relationships are designed for change. As I write […]

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Redefining ‘A Good Life’

Andy and I have discovered that strengthening our relationship, and our relationships with family and friends, is our number one way for both of us- patient and caregiver- to live the good life. Having a good life has almost become a cliché. “Whoever ends up […]

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Creative Caregiving: Treasure Hunting

Andy’s hands, that shook uncontrollably for seven years, are now still. When he holds my hand in his, I feel treasured. It makes me smile when I hear about any sort of treasure hunting. As a small child I was enchanted with the idea of […]

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Creative Caregiving: Be Practical

If you are stuck or confused or overwhelmed because of living with a disease, one way towards wellness is to take one step and do one practical thing. When a loved one gets sick everything changes. For me, when Andy was diagnosed with Parkinson’s, the […]

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Much of Success is About the Long Haul

Rushing is a sign of imbalance. I am in my 5th week of recovery after breaking my femur and hand in a weird fall over a curb, at midnight, in Spain, pulling a suitcase out of a bus. I was completely sidelined in that moment […]

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