A-Way-Through

Caretaking for Parkinson’s is a life we courageously live; finding our way through to a life we love—is what we consciously choose to create.

Tremors

Tremors make living hard. For Andy, it began innocuously in only one finger and seemed like an annoyance. After a year, it grew into the life altering condition people with Parkinson’s live with and that makes friends wonder how they can live that way. Tremors […]

Spread the Love
0 comments

Long Term Parkinson’s Strategies

What I see as the cruelest aspect of this disease is when a patient accepts and allows that their symptoms isolate them from life and therefore live in “otherness” leaving so called healthy people to carry on without them. For Andy and me, Parkinson’s has […]

Spread the Love
2 comments

Parkinson’s Never Stops

Being diagnosed with an incurable disease doesn’t mean your life is now on a downhill trend forevermore. I think a lot of us suppose this to be our fate but my experience has shown me that it is not true. We’ve learned so much living […]

Spread the Love
2 comments

Moments of Grace

Last night I woke up to laughter. It was Andy laughing in his sleep and I pushed myself into consciousness to truly hear him. Parkinson’s has taken his voice and that includes his laugh. It’s been eight and a half years since I’ve heard him […]

Spread the Love
2 comments

Garden Room

I felt completely welcome which surprised me because I was plopped in the middle of a house that was not my own and I needed help to do everything. Some experiences are so profound that words seem inadequate to describe them. I’ll try anyway. Arriving […]

Spread the Love
4 comments

Being Evacuated

-The starkness of the gaping hospital door I saw as I lay in the ambulance waiting for Brendan to come out and the relief finally seeing his silhouette coming towards me. I lay in that bed for ten days.  Just before the ambulance came to […]

Spread the Love
0 comments

A Room With A View

My longing to write, to speak and to walk urgently got my attention. The only thing I knew for sure was that I needed to learn new ways to be. While laying in a hospital bed, I was graced with a large window next to […]

Spread the Love
0 comments

Death and Change

Change is not our enemy- nor does all suffering have to be. Both are the most powerful tools we have to grow into our own lives and fulfill our destinies. My Dad died. He was old and had lived a wonderful life, he didn’t suffer […]

Spread the Love
2 comments

Presence

Meeting my Dad’s new presence has broadened my own field- the ground where I stand. My Dad’s absence, since he died, has left room for another kind of presence. When I lived in his home for a month with my Mom his presence was happy, […]

Spread the Love
0 comments

Joy and Sorrow

Joseph Campbell advises us to, “LIVE JOYFULLY IN THE SORROWS OF THE WORLD.” 40 years ago in August 1982, I was pregnant with Andy’s and my first child. We came to Taos for the first time to explore the idea of birthing our baby in […]

Spread the Love
2 comments