Making the effort to travel is one way we’ve chosen to mitigate the effect of our losses and to create new possibility. I have found that traveling with my husband, who has lived with Parkinson’s disease for 18 years, is important to us. When planning […]
We are no longer anonymous when we travel together- we have become ambassadors representing every person who lives with an illness that can cause awkward moments. What is an awkward moment? As I think about my own awkward times, they usually occur because I have […]
When we traveled to India, we had a very different experience when we were out in public and that gave Andy the courage to embrace for himself that he could be a teacher, instead of a spectacle. When we arrived at the orphanage, we were […]
We rarely saw other people who were dealing with an illness or a condition that was visible. Andy was often the only person in the hardware store or the grocery line who was shaking. What gets lost in the soul of a person who lives […]
So, why travel when the patient has to deal with all these obstacles? On the surface, “traveling with Parkinson’s” sounds like a story about the Parkinsons family- but Parkinson’s is also an incurable disease that wreaks havoc on any family who has a loved one […]
People living with chronic and often incurable disease cannot will their condition away. It’s up to those without those challenges to notice, step up, offer, be willing, engage and support those brave enough to come out of isolation and grace our world with their presence. […]
Andy has loved weight lifting for most of his life and Parkinson’s stopped that activity for years, because it was too dangerous. Nowadays, I drive Andy to the gym and he works with a gifted personal trainer who has a deep understanding of Parkinson’s challenges. […]
Parkinson’s is both a movement disorder AND a neurological disease and this twofold simultaneous condition creates a set up for risky behavior to occur. Risky behavior and wellness don’t go together. I don’t know if Parkinson’s disease by itself actually causes a patient to engage […]
Andy’s whispered words carry weight. After Andy gently told some musician friends to “Keep practicing!” Another friend observed, “Andy says in a two word whisper more than most people say in an hour of talking.” As I age and have plenty of years under my […]
Many Parkinson’s patients experience a symptom called Bradykinesia- or slowness of movement. The cause of this symptom is a lack of dopamine but the effect I’ve seen in Andy is frustration and a lack of tolerance both in himself and in people interacting with him- […]
