Month: November 2022

What I see as the cruelest aspect of this disease is when a patient accepts and allows that their symptoms isolate them from life and therefore live in “otherness” leaving so called healthy people to carry on without them. For Andy and me, Parkinson’s has […]

Being diagnosed with an incurable disease doesn’t mean your life is now on a downhill trend forevermore. I think a lot of us suppose this to be our fate but my experience has shown me that it is not true. We’ve learned so much living […]

Last night I woke up to laughter. It was Andy laughing in his sleep and I pushed myself into consciousness to truly hear him. Parkinson’s has taken his voice and that includes his laugh. It’s been eight and a half years since I’ve heard him […]

I felt completely welcome which surprised me because I was plopped in the middle of a house that was not my own and I needed help to do everything. Some experiences are so profound that words seem inadequate to describe them. I’ll try anyway. Arriving […]