All lives go through times of discouragement and hard news and it is then that we can turn to the very small things that bring us joy and allow them to lift us up. Parkinson’s is such a long disease…once it begins it goes on […]
Nobody wants to live without companionship and connection. These are basic human needs we all have. As a wife and mother and daughter, sister, aunt, cousin and now mother in law I relate to how relationships flow and shift, when they are healthy. Nobody has […]
Those of us who have pets can usually know if our dog, cat or horse is out of sorts or happy. It is this same reading of energy we naturally do with them, that I am learning to do with Andy. One of the strangest […]
I say, “With Parkinson’s old things become new things.” In my 30 years of life with Andy, before Parkinson’s- from age 17-47 for me- he is the one in our partnership who planned for our mutual goals. I was a willing and creative partner and […]
I like to and am able to move to many types of music and I also love to be in synchrony with Andy. He doesn’t have the ability to adjust to the variety of music life presents and so it is up to me to […]
Incurable disease is a life sentence.Let’s reemphasize that.Incurable disease is a life sentence not a death sentence. I thought that Parkinson’s disease hijacking Andy’s voice and rendering him a forever whisperer was as bad as that could get, until we were in speech therapy for […]
Parkinson’s has an effect on a patient’s voice and therefore on their ability to communicate. During Andy’s first 10 years living with Parkinson’s, his body shook like hell. The list of what he couldn’t do anymore was extensive and grew longer as time went on. […]
The seasons of life rightly include different people at different times. Parkinson’s is a disease that often isolates the patient- not because of contagion but because the symptoms can make one feel unfit to be out in the world. The world can also be unsafe […]
It’s weird. Just like so many symptoms people with Parkinson’s live with, “freezing” can only be helped if it is known. Education is part of becoming at ease and living well no matter what the symptom is. The term “freezing” in Parkinson’s disease, refers to […]
Andy and I are in Hawaii for three weeks. We arranged a home exchange here last year and were able to do it again. Our borrowed house is on a hill overlooking the Pacific Ocean and we swim every morning at Kauna Oa beach, a […]
